The topic at hand is about how the COVID-19 pandemic is affecting people with ostomies. It explores the challenges they face in their daily lives, particularly in terms of pouch care and managing their supplies. Here are some helpful insights and advice for navigating these times:
1. Infection Risk and Immunity
- If you are on immunosuppressants like Humira, commonly used for Crohn’s or Ulcerative Colitis, or if you have a naturally low immune system, consider yourself high-risk. It's important to practice strict social distancing, maintain good hand hygiene, and avoid being around anyone who is coughing or sneezing.
- In the UK, guidance suggests that vulnerable groups should self-isolate for 12 weeks.
2. Managing Pouch Care While Traveling or Working
- Keep a roll of paper towels and a refillable water bottle in your vehicle. These can be handy substitutes for scarce toilet paper and allow for discreet pouch emptying. Remember to flush only small amounts at a time to prevent clogs.
3. Obtaining Ostomy Supplies
- In the U.S., suppliers have requested that customers avoid calling early or over-ordering, as phone lines are very busy.
- In the UK, Salts Healthcare has reassured users that manufacturing and supply are normal, so there is no need to stockpile.
- It's best to wait until your regular reorder date before contacting suppliers.
4. Pharmacy and Medication Pick-Up
- Use drive-thru pharmacies if they are available to you.
- If a drive-thru is not an option, such as in some parts of the UK, consider arranging for home delivery. Paying a local taxi fare for delivery might be cheaper than parking and can reduce your exposure.
5. Coping with General Shortages and Isolation
- Be prepared for limited availability of items like toilet paper, soap, pasta, and some produce. However, ostomy products themselves are not currently in short supply.
- Connect with the ostomy community for shared problem-solving and emotional support during social restrictions. Many find comfort in the mutual aid that has long been a part of this community.
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