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Apr 14, 2020

Stoma size increase and bleeding, is it normal?

This topic is about concerns and questions that can arise after having an ileostomy, particularly when noticing changes in the stoma size, minor bleeding, and odor issues five weeks post-surgery. Here are some helpful insights and advice for managing these concerns:

1. Normal Stoma Changes and When to Seek Help
- It's normal for the stoma to change in size and shape for up to six months after surgery, and sometimes even longer.
- Common reasons for these changes include healing, temperature changes, blood flow, food intake, and other factors like shower heat or a hernia.
- The stoma can bleed easily if rubbed or nicked, but this should be light and stop quickly.
- Contact a healthcare professional if you experience heavy or continuous bleeding, sudden color changes, warmth or redness, or any signs of infection or other medical emergencies.

2. Measuring and Cutting the Wafer
- Measure your stoma every time you change the appliance, at least weekly in the beginning and monthly later on.
- Many people cut the wafer 1–2 mm larger than the stoma, but some prefer it slightly smaller to prevent leaks. Find what works best for your skin.
- Use a mirror to check that the wafer edge is not digging into the skin.
- Stoma paste, prep wipes, and barrier rings can help fill gaps and protect the skin, especially if the stoma is oval or shifts.
- If the stoma swells temporarily, cold water or a sprinkle of sugar can help reduce the swelling before applying the appliance.

3. Managing Wafer-Fit Problems Due to Shape Changes
- If the stoma leans or the abdomen has dips, use half a wax or barrier ring to create a flatter surface.
- For hernias or prolapses that enlarge one side, consider cutting a larger hole or using a larger pre-cut size to prevent rubbing and bleeding.

4. Odor Control
- Check if your pouch has charcoal filters, as gas and odor can escape through them.
- Persistent odor might indicate seepage under the wafer or waste over the filter, signaling it's time to change the appliance.
- Waste caught under the cloth cover of a faceplate can smell before it reaches the outer edge.
- Change pouches frequently, as some materials may allow odor to pass through.
- Consider using deodorizing drops, peppermint tea, or adjusting your diet to manage odor.
- Taping over the filter can help reduce smell if the filter leaks.

5. Skin-Care and Leakage Checks
- After removing the barrier, blot the skin-side of the ring with a paper towel; any dampness suggests leakage that needs addressing.
- Use stoma powder on irritated skin before applying a barrier wipe, known as the "crusting" technique.
- Itching usually means output has contacted the skin, so adjust the fit or add a ring or paste.

6. General Encouragement
- Handling the appliance becomes easier with practice, and many people still experience daily size fluctuations even years later.
- Online forums and ostomy nurses are valuable resources, especially when in-person visits are limited.
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