This topic is about concerns and questions that can arise after having an ileostomy, particularly when noticing changes in the stoma size, minor bleeding, and odor issues five weeks post-surgery. Here are some helpful insights and advice for managing these concerns:
1. Normal Stoma Changes and When to Seek Help
- It's normal for the stoma to change in size and shape for up to six months after surgery, and sometimes even longer.
- Common reasons for these changes include healing, temperature changes, blood flow, food intake, and other factors like shower heat or a hernia.
- The stoma can bleed easily if rubbed or nicked, but this should be light and stop quickly.
- Contact a healthcare professional if you experience heavy or continuous bleeding, sudden color changes, warmth or redness, or any signs of infection or other medical emergencies.
2. Measuring and Cutting the Wafer
- Measure your stoma every time you change the appliance, at least weekly in the beginning and monthly later on.
- Many people cut the wafer 1–2 mm larger than the stoma, but some prefer it slightly smaller to prevent leaks. Find what works best for your skin.
- Use a mirror to check that the wafer edge is not digging into the skin.
- Stoma paste, prep wipes, and barrier rings can help fill gaps and protect the skin, especially if the stoma is oval or shifts.
- If the stoma swells temporarily, cold water or a sprinkle of sugar can help reduce the swelling before applying the appliance.
3. Managing Wafer-Fit Problems Due to Shape Changes
- If the stoma leans or the abdomen has dips, use half a wax or barrier ring to create a flatter surface.
- For hernias or prolapses that enlarge one side, consider cutting a larger hole or using a larger pre-cut size to prevent rubbing and bleeding.
4. Odor Control
- Check if your pouch has charcoal filters, as gas and odor can escape through them.
- Persistent odor might indicate seepage under the wafer or waste over the filter, signaling it's time to change the appliance.
- Waste caught under the cloth cover of a faceplate can smell before it reaches the outer edge.
- Change pouches frequently, as some materials may allow odor to pass through.
- Consider using deodorizing drops, peppermint tea, or adjusting your diet to manage odor.
- Taping over the filter can help reduce smell if the filter leaks.
5. Skin-Care and Leakage Checks
- After removing the barrier, blot the skin-side of the ring with a paper towel; any dampness suggests leakage that needs addressing.
- Use stoma powder on irritated skin before applying a barrier wipe, known as the "crusting" technique.
- Itching usually means output has contacted the skin, so adjust the fit or add a ring or paste.
6. General Encouragement
- Handling the appliance becomes easier with practice, and many people still experience daily size fluctuations even years later.
- Online forums and ostomy nurses are valuable resources, especially when in-person visits are limited.
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