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Mar 15, 2010

Dealing with a Very Active Stoma - Seeking Advice

This topic is about managing an over-active ileostomy, which can involve dealing with issues like excessive gas, foam in the pouch, and worries about blockages. The person sharing their experience has had an ileostomy since 2005 and is facing challenges with loose output, gas, and occasional abdominal pain. They are seeking advice from others who might have similar experiences. Here are some helpful insights and advice shared by others:

1. Common triggers of gas, foam, and high output:
- Raw vegetables, salads, beans, high-fiber foods, and tight belts over a stoma can increase gas and foam.
- Popcorn, nuts (especially almonds), and kernel corn can lead to painful blockages, so some people avoid them entirely.

2. Ways to keep output thicker and quieter:
- Consider the BRAT diet, which includes bananas, rice, applesauce, and toast.
- Adding 1–2 bananas or a few marshmallows daily can help.
- Focus on easily digested proteins and limit insoluble fiber.
- Some people take lutein and beta-carotene capsules or drink small amounts of vegetable juice to get nutrients from raw vegetables.
- Gas-control products like Ileogel or other over-the-counter options can help reduce ballooning.

3. Eating techniques that help:
- Eat smaller, slower meals and chew food thoroughly to a purée consistency.
- Some people avoid raw produce, while others manage small portions by cutting food finely or mashing it.
- A high-powered blender can puree raw fruits and vegetables to make them easier to digest.

4. Preventing or relieving blockages at home:
- Drink plenty of water or clear fluids; some find pulp-free grapefruit juice helpful.
- The knees-to-chest position, a hot bath, and gentle walking can keep things moving.
- Stay active and avoid lying down for long periods if a blockage is suspected.

5. Pouching and wafer suggestions for very active stomas:
- Many prefer a 2-piece Hollister system for easier emptying and better overnight security.
- If wafers lift quickly, try different brands, extra adhesive, or support belts.

6. General observations:
- Stress can increase activity for some people.
- Occasional unpleasant nights with the pouch are common, so routine overnight checks can help.
- Trial-and-error with foods and appliances is essential, as everyone’s tolerance level is different.
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