This topic is about dealing with chronic pressure and pain behind an ileostomy, which is a type of stoma. An individual from Germany is experiencing severe, localized pressure and pain right at the stoma site, which feels different from the usual discomfort caused by trapped gas. They have tried creating a new ileostomy, but it didn't alleviate the problem. They are reaching out to find others who might have experienced similar issues or have found solutions.
Here are some pieces of advice and insights shared by others:
1. Consider the possibility of a peristomal hernia:
- One person with similar symptoms discovered a small hernia just inside the stoma, which occasionally blocked output and gas.
- Keeping the stoma opening clear helped them. They use Coloplast Stoma Plugs, which are porous plugs that allow gas to escape while preventing the opening from closing.
- It's important to experiment with different devices and techniques to find what works best.
2. Gas-management strategies:
- Identify and limit foods that cause excess gas. Keeping a food diary can help pinpoint which foods worsen the pressure.
- Use over-the-counter anti-gas tablets, such as simethicone products, after meals that produce gas.
- When experiencing pain, try lying down, relaxing, drinking some water, and gently massaging around the stoma to help release trapped gas.
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