This topic is about a young woman reflecting on her first year living with a permanent ileostomy, which she named "Stanley," after a serious medical emergency. She shares her journey through the initial health crisis, the challenges she faces with PTSD, and her concerns about living with a stoma. Here are some insights and advice shared by others who have been through similar experiences:

1. Celebrating the "stomaversary":
- Many suggest marking the day in a way that feels meaningful, as a way to acknowledge survival and progress.

2. Coping with PTSD, anxiety, and hospital triggers:
- Use a night-light or keep the TV/radio on to ease the silence.
- Have a trusted person stay overnight when possible.
- Take recovery one day at a time, consider small-group or individual PTSD therapy, and share feelings with supportive peers.

3. Self-advocacy and medical follow-up:
- Consider filing a formal complaint about the A&E experience to prevent it from happening again.
- Insist on imaging like X-rays or CT scans if severe abdominal pain returns, and be firm when seeking help.
- Don't feel pressured into surgeries like a pouch if you're not comfortable; seek second opinions.

4. Managing a retracted stoma and leakage:
- Use a convex system with a barrier ring/seal to help with a flush or sunken stoma, which can extend wear time.
- Apply paste and flange extenders for extra security, and adjust your diet to manage output consistency.

5. Experiences with stoma revision:
- Some have had successful stoma revisions with smooth recoveries and reduced leaks, using convex barriers and paste for added security.
- Surgeons can use mesh during revision to help prevent future hernias.

6. Considerations for rectal-stump removal:
- Early removal can provide relief, but discuss potential side effects like changes in bladder sensation with your doctor.

7. Fertility and hernia issues:
- Multiple surgeries and scar tissue can impact fertility, so discuss reproductive plans with specialists before further surgery.
- Mesh-supported stoma sites can help reduce hernia risk.

8. General encouragement:
- Many offer ongoing support, virtual hugs, and shared experiences, reminding her that she is an amazing survivor.

These insights and advice come from a community of people who understand the challenges and triumphs of living with an ostomy.