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Nov 19, 2022

Managing Frequent Stoma Bleeding and Surgical Options

This topic is about a person who has been experiencing ongoing bleeding from their stoma after having a revision surgery for an ileal conduit. This situation is quite concerning, especially given the person's medical history and the potential need for further surgery. Here’s a bit more detail and some advice that might be helpful:

- The person had a radical cystoprostatectomy with an ileal conduit back in 1994 due to bladder cancer. For over 24 years, they only experienced minor bleeding during the change of their urostomy pouch, which they did every 5 to 6 days.

- Starting in 2019, the bleeding became more frequent. A urologist tried to manage it with silver-nitrate cauterization, but it didn't resolve the issue.

- Due to a history of stroke and the need for continuous anticoagulation, the original urologist advised that further surgery could be risky.

- Despite this, a new urologist performed a stoma revision in October 2022. Unfortunately, the bleeding persisted, and the urine flow changed, causing the person to need to change their wafer and pouch every 1 to 1.5 days.

- The surgeon has suggested two options: another revision surgery soon or a redo of the original 1994 surgery to create a new stoma, planned for early 2023.

- The person has had to visit the emergency room 10 times in 2022 due to bleeding and clotting issues and is urgently seeking advice, referrals, or alternatives.

Here are some insights that might be useful:

1. Review any medications being taken. Chronic use of NSAIDs, aspirin, or prescribed steroids, such as those taken for a CT-contrast allergy, can worsen gastrointestinal bleeding. This could potentially make stoma bleeding worse, especially when ileal tissue is involved. It might be worth discussing with the medical team whether these medications can be reduced, substituted, or temporarily stopped.
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