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Jan 15, 2023

Reversal After 3 Years - Recovery Experiences?

The topic at hand is about considering an ostomy reversal after living with an ileostomy for three years. The person is curious about what the recovery process is really like, especially after reading some daunting stories. They are seeking real-life experiences from others who have undergone a delayed reversal.

Here are some insights and advice shared by others:

1. General perspectives on whether to reverse:
- Some people decided against reversal because their original health issues, like ulcerative colitis or cancer, were not fully resolved, or because they found their quality of life with an ostomy to be good.
- Others who chose reversal suggest that the decision should depend on whether the initial problem has been resolved and how the current quality of life with the ostomy is.

2. Recovery experiences—colostomy vs. ileostomy:
- Colostomy reversals often lead to quicker recovery of bowel function with fewer complications, as the remaining colon can help absorb water and thicken stool.
- Ileostomy reversals may have higher failure rates and longer adjustment periods, with issues like frequent watery output, skin irritation, hemorrhoids, and the need to adjust dietary habits.
- If any part of the colon is left, it can improve stool consistency and control. Without it, expect a high-volume liquid output that gradually thickens over time.

3. Typical post-reversal challenges:
- High frequency of bowel movements, sometimes up to 10 times a day initially.
- Butt pain, raw skin, and hemorrhoids; some suggest using Preparation H preventively.
- Accidents and urgency during the adjustment phase, with night-time accidents decreasing over time.
- The need to identify "safe" foods and avoid eating before long outings.

4. Helpful management strategies:
- A routine to slow down bowel movements using Metamucil and Imodium twice daily, with Lomotil on hand for unexpected liquid output.
- Gradually experimenting with diet to identify and manage triggers.
- Planning for bathroom access and carrying supplies when away from home.
- Taking care of skin around the anus to prevent or treat irritation.

5. Complications for those who kept their ostomy:
- Peristomal hernia is common but often manageable and painless.

6. Key questions to consider before deciding:
- Have the conditions that led to the original ostomy been fully resolved?
- What are the success and complication rates for reversals at the specific medical center?
- What is the plan for managing high-output diarrhea and skin issues after surgery?
- How will reversal impact your current lifestyle, work, and activities compared to staying with the ostomy?

Products and medications mentioned include Preparation H, Metamucil, Imodium, and Lomotil.
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