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Sep 15, 2008

Ileostomy Surgery Experiences Needed

This topic is about someone who is preparing for ileostomy surgery after their J-pouch, which they have had for 8 years, developed complications. They are looking for advice and experiences from others who have gone through similar surgeries and recovery periods.

Here are some helpful insights and advice shared by others:

1. The hospital stay typically lasts 4 to 6 days if the patient is in good health. To be discharged, the patient should:
- Be able to pass gas or stool through the stoma.
- Have pain managed with oral medications.
- Show no signs of fever or infection.
- Stay hydrated and tolerate food.
- Walk independently and manage basic self-care.
- Know how to empty the pouch and have a basic understanding of how to change it, with home-health nurses available for further teaching.

2. Bowel function usually returns within 1 to 4 days. Initially, the output is very liquid, ranging from 1 to 3 liters per day, but it will slow down and thicken over the following weeks. Expect to empty the pouch 7 to 9 times daily and at least once during the night.

3. For hydration:
- Sip small amounts of fluids frequently rather than drinking large amounts at once.
- Choose warm or room-temperature drinks over ice-cold or carbonated ones to minimize bloating and gas.

4. Recovery to normal activities or work generally takes 6 to 8 weeks. Light walking can help boost energy. It's a good idea to arrange help with shopping, driving, housework, and meals. Emotional ups and downs are normal as you adjust to the new stoma.

5. Since more of the small intestine is being removed, discuss with your surgeon:
- The need for Vitamin B-12 supplementation.
- Medications to slow down output, such as Imodium (loperamide) or Lomotil (diphenoxylate-atropine).

6. Regarding fertility, additional pelvic surgery can increase the risk of infertility, but there have been successful pregnancies after ileostomy. Assisted reproductive techniques are available if needed.

7. Community members are offering ongoing support and encourage reaching out whenever needed.
See full discusison
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