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Sep 15, 2008

Ileostomy Surgery Experiences Needed

Topic Explanation
The discussion in the forum revolves around seeking experiences and advice related to undergoing ileostomy surgery. The original poster is scheduled for an ileostomy due to complications with a j-pouch and the development of fistulas. They are seeking insights on what to expect during and after the surgery, particularly in the immediate days following the procedure.

Advice and Helpful Insights
1. Hospital Stay and Discharge Criteria:
- Hospitalization typically lasts between 4-6 days, assuming no complications and good overall health.
- Discharge criteria include the return of bowel function (passing gas and stool through the stoma), pain management with oral medication, absence of fever or infection, adequate hydration, ability to retain food, independent mobility, and some personal care.

2. Post-Surgery Expectations:
- Bowel function may return immediately or could be delayed by a few days; 2-4 days is standard.
- Initially, you may be started on liquids, progressing based on the presence of bowel sounds and gas in the pouch.
- Early stool output is often very liquid and can be high volume (1-3 liters/day), but should decrease and thicken over the following weeks.
- It's common to feel gassy and bloated for the first 10 days. Managing hydration by drinking small amounts frequently and opting for warm or room temperature fluids can help reduce discomfort.

3. Ileostomy Management:
- Patients should learn to independently empty and change their pouch during the hospital stay, although a home health nurse might continue this education due to the short hospitalization period.
- The pouch typically needs to be emptied 7-9 times a day initially, including at least once during the night. It should be emptied when it is 1/2 to 1/3 full.

4. Recovery and Lifestyle Adjustments:
- Full recovery and return to normal activities or work usually take about 6-8 weeks for those in good health.
- Assistance with shopping, driving, house cleaning, and meal preparation can be beneficial during recovery.
- Walking is recommended to regain energy but should be approached gradually.
- Emotional fluctuations are normal following surgery and adjusting to a new stoma.

5. Nutritional and Medicinal Considerations:
- Discuss with your physician the need for vitamin B-12 supplementation and possibly medications to slow stool output (e.g
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