Ostomy Day

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11
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659
Tee in TX
Oct 04, 2025 2:58 pm

This is my first World Ostomy Day. Thanks to you all for sharing your experience with me. It has helped me so much. Six months out of an emergency surgery that was unexpected and left me with my stoma has been rough, but I have learned so much from you all. ❤️

AlexT
Oct 04, 2025 3:41 pm

Every day is Ostomy Day.

infinitycastle52777
Oct 04, 2025 3:56 pm
Very helpful

Six months out, wow. You are a fresh new ostomate. Welcome. I'm glad you are learning a lot here. There is so much to know about having an ostomy. I love it here because you can ask questions and get answers. Plus, you can learn just by reading other people's questions and responses.

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


mia17
Oct 04, 2025 5:04 pm

Yay, this is my first ostomy day too! Cheers to everyone who has been so kind and supportive on this site; you are so valuable! 💛

GoinWithTheFlow
Oct 04, 2025 5:31 pm

We've been so grateful for all the generous sharing of information on this site! Happy World Ostomy Day!

https://www.ostomy.org/world-ostomy-day/


 

Living with Your Ostomy | Hollister

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NikkiD
Oct 04, 2025 9:57 pm
Very helpful

Hi Tee, this is my first World Ostomy Day too. I'm 5 months post-op. I'm ashamed to admit that until I woke up in ICU with my surprise ileostomy, I had never heard the word ostomy. Like you, I am so grateful to have found this group. Everyone is so kind and helpful. I've learned so much from these wonderful folks.

Tee in TX
Oct 04, 2025 10:41 pm

It's been an interesting trip. A lot of ups and downs for sure, and I have learned a lot from so many other ostamates. I'm here if you need an ear 👂

Tee in TX
Oct 04, 2025 10:53 pm

Agreed, I felt so lost and alone. Now I don't. 😉❤️

Mr Brightside
Oct 05, 2025 1:21 pm

Well, this was my second. I didn't even know it existed until I just saw this post. 🤦‍♂️

But as Alex said above, I guess every day is ostomy day for us. 🤷‍♂️

mia17
Oct 05, 2025 6:26 pm

Me too, thank goodness for this website 💛

warrior
Oct 06, 2025 8:19 am

We the people make the site. Those sitting on the sidelines need to join in. As it seems, that's happening rather quickly.

More people = more help = better life.

Hugo
Oct 06, 2025 2:41 pm

I am so grateful that this site exists. It has helped me deal with my new normal immensely. I would have been lost without all of you. Cheers to us ostomates!