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Apr 22, 2011

Explaining Ostomy to Others: The Power of Language

This topic is about how to explain having an ostomy to others, whether they are friends, co-workers, or potential romantic partners. It focuses on choosing the right words, using humor, and maintaining a positive perspective. Here are some helpful insights and advice:

1. Words matter. The way you describe your ostomy can shape how others react. Some people prefer using "pouch" instead of "bag" and find terms like "appliance" too euphemistic. Describing it as a "prosthetic colon" or "prosthetic bladder" might make things clearer for some.

2. Humor can be a great tool. Using playful terms like "external plumbing" or "soft-serve nozzle" can help break the tension. You might even joke that your pouch is "probably cleaner than the average butthole."

3. A positive attitude makes a difference. Instead of feeling sorry for having an ileostomy, focus on the reasons that led to it. This mindset can make conversations easier.

4. As you gain more experience, you might find that your attitude matters more than the specific words you use. While you might still dislike the word "bag," humor, like sticking googly eyes on the pouch, can help you stay comfortable.

5. Treat your ostomy as a routine medical device. Compare it to a pacemaker or another life-saving prosthetic. Most people accept this straightforward framing.

6. Use humor to ease discomfort. Playful terms or light jokes can quickly lower any awkwardness for both you and the listeners.

7. Choose words that feel right to you, whether it's "pouch," "appliance," or "prosthetic." Stay consistent, and only correct others if it really bothers you.

8. Keep your initial explanation simple. You might say, "I had my colon removed, so I poop through a small opening on my belly into a pouch." Expand on this only if asked.

9. Children often model acceptance well. A toddler's casual comment like "Is that your stinky?" shows the power of simple language.

10. When it comes to dating:
- Disclose your ostomy before becoming intimate. If hands go below the neck, they need to know.
- A partner who rejects you because of the pouch can be seen as a "jerk detector," helping you find out early if they're not the right person.
- You don't have to announce it on a first date. First, gauge their attitudes toward medical issues.
- One person with an ostomy reported only one negative reaction in over 45 years by keeping disclosure straightforward.

11. In work or social settings, establish your preferred terminology early. Use humor to deflect trivial complaints and project confidence—people will follow your lead.

12. For those who use irrigation, if questioned, give a short explanation like "I irrigate every 48 hours for freedom from bag changes," and skip the details unless asked.
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