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May 18, 2009

Finding Ostomy Support Groups in Underserved Areas

This topic is about the challenges faced by people with ostomies when there are no local support groups available. The person who started the discussion is frustrated because they believe many people with ostomies are struggling alone. They feel that without a local group, people miss out on a place to share their experiences, learn, and get advice.

Here are some insights and advice shared by others:

1. Starting a local support group can be challenging. One person shared their experience of trying to start a group in Australia. They found that many people were hesitant to talk about their condition publicly. Attendance only increased when free food was offered, and interest dropped when a membership fee was introduced.

2. Online communities often serve as a practical alternative to in-person groups. These forums can provide a space for people to connect, share experiences, and offer support to one another.

3. For those considering stoma reversal, it's important to remember that it is still a major surgery. However, recovery can be smooth, and after healing, you might "almost forget" the stoma was ever there, as long as there is no remaining disease, like Crohn’s in the rectum.

4. Several people offered to provide one-on-one support and share their stories, highlighting that peer support is available even if local groups are not.
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