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Aug 18, 2011

Adjusting to Life After an Ileostomy

Adjusting to life after an ileostomy can be quite a journey, especially when it comes to managing night-time routines and unexpected cravings. Here are some insights and tips that might help make this transition a bit smoother:

- Night-time Emptying: Waking up to empty your pouch can be disruptive. Consider using output-thickening products like ileo gel thickeners, Morphorm gel thickeners, or GelX capsules. Foods like marshmallows and jelly babies can also help thicken the output.

- Meal Timing and Size: Try eating smaller meals throughout the day and avoid eating after 7:30–8:00 p.m. Having an earlier and lighter dinner might help reduce overnight output. Always empty your pouch before going to bed.

- Sleeping Position and Aids: Sleeping on your back instead of your side can help reduce output and prevent appliance issues. Using a wedge system under your head and legs might reduce bathroom trips to just once a night.

- Medications: Some medications can help slow down output, but they should be used under medical guidance. Options include codeine tablets, Imodium (loperamide), DTO (Distilled Tincture of Opium), and low-dose morphine.

- Salt and Electrolytes: Craving salty foods is common and indicates a need to replace lost electrolytes. Potato crisps and a can of Coca-Cola can help rebalance electrolytes during very liquid spells. A pinch of baking soda in the pouch can help with odor and acidity. Remember to stay hydrated while increasing salt intake.

- Routine Development: It's normal to get up once a night to empty your pouch. Accepting this as part of your routine can help reduce anxiety. Everyone's body adjusts at its own pace, and patterns often stabilize within months. The first 1–2 hours after meals usually produce the heaviest output, so plan your evening meals accordingly.

- Vegetarian Diet Considerations: Reintroduce fibrous vegetables slowly and chew them thoroughly. Preparing veggies by peeling, cooking well, or blending can make them easier to digest.

- Emotional Support: It's common to experience mood swings after multiple surgeries. Give yourself time to heal emotionally and seek support from peers or professionals. Online ostomy communities can offer a sense of family and encouragement, especially when you're living abroad and coping alone.
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