This topic is about someone who recently underwent emergency ileostomy surgery due to a severe flare-up of ulcerative colitis. The person is dealing with a challenging recovery, including an infected surgical wound and feelings of isolation, as none of their friends have ostomy experience. They are seeking companionship and understanding from others who have been through similar experiences. Here are some pieces of advice and insights shared by others:
1. You are not alone
- Many people find comfort and understanding through online communities, live chats, and local support groups like the UOAA or “Young Ostomate” groups.
- Feeling isolated is common but usually temporary. Reaching out can help.
2. Give yourself time
- Both physical and emotional healing can take several months. It's normal to feel overwhelmed initially, but many people go on to lead active lives.
- Be patient with yourself and allow your wounds to heal before making long-term judgments about your new lifestyle.
3. Reframe the stoma
- Try to view the stoma as a lifesaver or even give it a playful name to help with acceptance.
- Some people find it helpful to thank their stoma for keeping them alive.
4. Everyday life & confidence
- Gradually returning to normal activities like shopping, dining out, and playing with children can help restore confidence.
- For clothing, consider wearing T-shirts untucked over slightly higher jeans, or skirts and dresses to conceal the pouch. Choose underwear that feels both attractive and supportive.
- Some people prefer not wearing underwear over the pouch, while others like boxers, briefs, or high-waist knickers. Comfort is key.
5. Appliance security & leak prevention
- Warm the wafer or plate with a hair-dryer before applying it to help it mold to your skin.
- With practice, many people can go 4–5 days between appliance changes.
- Local Ostomy Associations can offer demonstrations of different products and accessories.
6. Gas noise and odor
- Products like the StealthBelt offer neoprene "mufflers" to quiet gas noises.
- A simple method is to gently place a hand over the stoma when you feel gas coming.
- To reduce gas, avoid carbonated drinks and using straws.
7. Products & brands mentioned
- StealthBelt neoprene muffler belts.
- Cymed two-piece systems are noted for their secure fit during sports and activities.
- Various powders, pouches, and supplies are available through national Ostomy Associations.
8. Supportive mindset
- Embrace courage daily, and remember that progress is made through small steps.
- Celebrate small victories, like buying a car or spending time with loved ones, and keep in mind that better days are ahead.
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