Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,404 members
Jan 11, 2012

My First Year on Remicade: Managing Crohn's with Ups and Downs

This topic is about a person's experience during their first year on Remicade (infliximab) for managing Crohn’s disease. They share how this treatment has impacted their health and daily life, highlighting both the improvements and challenges they've faced.

- After starting Remicade, the person noticed a significant improvement in their overall health and quality of life.
- Ulcers have cleared up, which has made taking care of their stoma much easier. The flange and pouch now last longer, and leaks are rare.
- They have more energy and can now cook and eat meals without needing to take breaks to rest.
- Despite these improvements, there have been some setbacks, including two episodes of kidney stones, a prolapsed stoma, two tooth extractions, and a current chest infection.
- Due to the immunosuppressive nature of Remicade, they are more prone to catching infections, especially from close contact with their grandchild.
- They acknowledge that Remicade may not work for everyone, but for now, it is the preferred treatment alongside other medications.
- They maintain a positive outlook, even though there are occasional tough days.

Additional insights include:

- The person has experienced a greatly increased susceptibility to infections as a side effect of Remicade. Their last infusion was delayed by two weeks because of an infected tooth.
- They advise always informing the infusion nurse about any infections and their treatments before receiving a Remicade dose.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,404 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Irritation at Bottom of Stoma: Anyone Used Mupirocin Ointment?
I wanna hear all the reasons!
Best Ostomy Support Belts for New Users
Hiking Tour in Japan with an Ileostomy: My Experience
Ileostomy Reversal
CORTISOL
Ileostomy and Kidney Disease: Seeking Advice and Experiences
LIFE BACKWARDS
Seeking Alternatives to Adhesive Ostomy Bags
Pelvic Floor Physical Therapy

New Topics

Positive outcomes
Swimming in the Ocean with a Stoma Exposed
Post-Ileostomy: Anyone Else Notice Abdominal Changes?
B. Withers -Be Kind 89
well here i am
*Magic LOve Spells 📞 @ +27762248449in San IgnaciO, BELIZE.*& Marriage spells, BRING BACK LOST LOVE 1OO%, VOODOO, PSYCHIC READING,** SPELL CASTER, MARRIAGE SPELLS, BLACK MAGIC$ GURU HEALER
Grateful
MY TREKKING POLE
Happy Halloween 🎃
Radiation and Chemo Effects on Colostomy
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑