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41,418 members
Mar 03, 2018

YES PLEASE TAKE MY COLON!!

This topic is about someone who has been living with ulcerative colitis for over four years and is now preparing for a total colectomy, which means having their entire colon removed. After trying various medications without success, they are looking forward to the surgery as a way to improve their quality of life. Here are some helpful insights and advice shared by others who have gone through similar experiences:

1. Life after total proctocolectomy/ileostomy:
- Many people who have had their colon, rectum, and anus removed report living full and unrestricted lives, even decades after the surgery.
- Some wish they had opted for the surgery sooner due to the significant improvement in their quality of life.
- While recovery can be challenging, especially if you're not in great health before the operation, the long-term benefits include freedom from ulcerative colitis symptoms.

2. Managing the immediate post-surgery period:
- Adjusting to life with an ileostomy bag may take some time, but it often becomes second nature once the initial healing phase is over.

3. Supplies and products:
- There are many brands of ostomy bags available. It's a good idea to research and request free samples to find the one that suits you best.
- For added discretion and support, consider looking into ostomy wraps or underwear from specialized companies.

4. Diet tips from long-term ileostomates:
- High-fiber foods like salads and fruits can cause rapid output or blockages, so it's best to eat them in small amounts and start meals with bread, other carbohydrates, or protein.
- Food tolerance varies from person to person, so it's important to experiment with timing and portions to find what works for you.

5. Emotional support:
- Joining local ostomy support groups and online communities can be very helpful for practical advice and maintaining a positive outlook.
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