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Jan 09, 2024

Ileostomy Since Sept 2020 - Overactive Stoma and Diarrhea Concerns

This topic is about someone who has had an ileostomy since September 2020 and is experiencing sudden high-volume, watery output. They are concerned about a possible blockage or inflammation. Here are some insights and advice shared by others:

- The person notices that everything they eat, even protein drinks, passes through very quickly. They are currently taking loperamide (Imodium) but are worried it might not be working anymore and are considering other medications like Lomotil or codeine.

- To prevent dehydration, they are sipping on Liquid I.V. – Hydration Multiplier. They are anxious about the situation and want to avoid a trip to the emergency room, although they have a gastroenterology appointment scheduled soon.

- Each time they change their pouch, they notice swelling around the stoma. Pressing on the area releases a large amount of mushy output.

Additional information shared by the person includes:

- They had a partial blockage about two and a half months ago, which was relieved by a resident who repositioned an incarcerated parastomal hernia.

- Currently, they do not have cramps, pain, or nausea and still feel hungry, but they are worried this might be another partial blockage.

Advice and insights from others include:

1. Possible partial blockage:
- Rapid liquid output followed by mushy output might indicate a blockage being forced out.
- Try physical maneuvers like sitting and leaning forward while tightening and relaxing the abdomen, slowly rotating side-to-side, or getting on all fours and rocking back and forth. Movement can help dislodge the obstruction.

2. Indicators of inflammation rather than blockage:
- Constant high-volume liquid output without pain might suggest bowel wall inflammation, which reduces absorption.
- Seek urgent evaluation, including bloodwork for inflammatory markers and possibly an ileoscopy or upper endoscopy. If symptoms worsen, consider visiting the ER for faster care.

3. Motility medications:
- Loperamide (Imodium) and Diphenoxylate-Atropine (Lomotil) are not known to lose effectiveness over time. It's a good idea to verify this with reliable sources if concerned.

4. Diet tips to thicken output and improve absorption/weight:
- Protein drinks and electrolyte solutions alone may pass through quickly.
- Adding complex carbohydrates can help thicken the output. One person found success with HULK Clean Mass Gainer by Perfect Sport, blending two shakes daily with milk, yogurt, and frozen fruit.
- Increase dietary salt intake, as people with ileostomies often need extra sodium to absorb fluids properly.

5. General guidance:
- If the output continues and you remain symptom-free, try eating normal foods and drinking varied fluids before adjusting medication.
- Stay alert for any worsening pain, cramping, or nausea, as these symptoms would require immediate medical or emergency room attention.
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