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Jan 13, 2024

Seeking Advice on Successful Ileostomy Reversals - Pros and Cons

This topic is about someone who has been living with an ileostomy since May 2023 after emergency surgery. Before that, they had a J-Pouch for 38 years. Now, they are considering the possibility of reversing the ileostomy by reconnecting their small intestine directly to their rectum. They are seeking advice and real-life experiences about the pros and cons of this type of surgery.

Here are some insights and advice shared by others:

1. One person chose not to go through with the reconnection surgery. They had the option to reattach their small bowel to the remaining part of their colon but decided against it. They explained that their life had been dominated by the urgency to find a bathroom, which was a significant factor in their decision.

2. For a successful reconnection, certain anatomical factors are important. These include having an intact terminal ileum, ileocecal valve, and anal sphincter.

3. The anal sphincter is naturally designed to handle solid stool. However, if the output from the small bowel is liquid, it might lead to leakage. This can cause constant moisture, skin irritation, and the need for absorbent powders or pads.

4. It is strongly recommended to consider quality-of-life issues carefully before deciding on the surgery.

5. Another person noted that since the original poster has lived with a J-Pouch for 38 years, they already have personal experience with what it feels like to have their small intestine connected to their rectum. This past experience might help them in making their decision.
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