Topic Explanation
The forum discussion centers around an individual who has had an ileostomy for three years and is experiencing severe rectal stump pain. Despite various diagnoses and treatments, the pain persists, leading to a decline in overall health, including malnutrition, hair loss, and dental issues. The individual expresses frustration and a desire for either a reversal surgery or rectum removal to alleviate the chronic pain.

Advice and Insights

- Seek Multiple Medical Opinions:
- Get a second or third medical opinion to explore all possible solutions.
- Be proactive and persistent in seeking medical help; don't settle for inadequate care.

- Consider Specialized Medical Centers:
- Look into teaching, research, or university hospitals for more specialized care.
- Consider institutions like the Cleveland Clinic or Mayo Clinic for complex cases.

- Evaluate Surgical Options:
- If experiencing severe pain and other complications, consider discussing Barbie butt surgery (complete removal of the rectum) with your doctor.
- Permanent ileostomy might be a better option if the rectal stump is causing significant issues.

- Understand the Cause of Pain:
- Determine if the pain is due to mucus buildup in the rectum, which can occur if mucus and sloth are not being passed.
- Investigate if the pain could be related to conditions like Crohn's disease or cancer.

- Be Your Own Advocate:
- Actively advocate for your health needs and push for the necessary medical interventions.
- Do not passively accept inadequate treatment; the squeaky wheel gets the grease.

- Personal Experiences:
- Some individuals have had similar issues and found relief only after having the rectum removed.
- Sharing personal experiences can provide insights and support for making informed decisions.