I’ve had my ileostomy for 3 years today! I haven’t been one of the lucky ones whose quality of life has improved. I’ve suffered from severe rectal pain since weeks after my surgery. I’ve been told it’s scar tissue, a few other diagnoses to see if one stuck. To me this stinks, my health has deteriorated, malnutrition, malabsorption, hairs falling out, teeth are bad… I’ve tried everything and nothing helps. If I was a surgical candidate I would have a reversal or have them remove my rectum. Period! I’m so tired of chronic pain every day!
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,628 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
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We conducted a survey to better understand the impact that living with an ostomy has on sleep.
Learn the results of our ostomy sleep survey.
Learn the results of our ostomy sleep survey.