Hello new friends!

Replies
21
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874
Past Member
Sep 04, 2025 12:57 am

Hello!

I'm a new ostomate. I have a colostomy and have had it since January. I believe that it is going to be permanent.

I am seeking friendship and advice.

SusanT
Sep 04, 2025 1:12 am

Welcome to the site! None of us dreamed of becoming ostomates, but we're sure glad to have our tribe here.

Past Member
Sep 04, 2025 1:24 am

Thank you for the welcome!

I have been struggling with what I can and cannot eat. I recently had a blockage and decided that Googling was not the best advice.

iMacG5

When I found this web site, I didn't think its name had anything to do with actually meeting an ostomate but I later learned there were some folks who did meet and develop relationships. How good is that? That wasn't my intention. I definitely didn't want anyone to meet me. I felt broken and wasn't prepared to express those feelings. I thought it was a place where ostomates wrote about themselves, posed questions, shared thoughts, told jokes and, sometimes, just vented. I thought of it as a community of folks with similar interests and various degrees of experience. Mostly I found some of the most caring, selfless, wise and understanding people I ever imagined. I was so impressed with some of the writings; not because of their literary value but the way in which they addressed such a very complex environment. I read hundreds of exchanges and admired the way folks cared for each other. I became hopeful with my own situation and looked forward to the next day's offerings. Certainly some contributors stood out with their experience or particular skills in addressing some things but it seemed like a total effort with synergistic results. I felt blessed to have found this site. I still do.
Mike

NikkiD
Sep 04, 2025 1:40 am

Welcome to the site. I'm pretty new myself. I got my ileostomy in April. You've found a great site full of wonderful, friendly people. I've learned so much from the folks here. There is someone here who can answer any question you may have.

eefyjig
Sep 04, 2025 1:55 am

Welcome Amethyst!

 

My Ostomy Journey: Jearlean | Hollister

Play
Past Member
Sep 04, 2025 1:56 am

Thank you, Nikki, for the welcome.

Riva
Sep 04, 2025 1:58 am

Hi and welcome. Just know you are not alone on this new journey. We're here for you 🌈

IGGIE
Sep 04, 2025 3:17 am

Welcome aboard, Amethyst. I hope we can answer any questions you need an answer for.

Regards, IGGIE

Axl
Sep 04, 2025 8:04 am

Welcome from Oz 🇦🇺

Justbreathe
Sep 04, 2025 10:11 am


Login to see image

we’re all in the same boat….welcome to the site that will most likely help to improve your knowledge of “stomahood” by those who have years of “on the job experiences” and are willing to share if needed.  You will also find an abundance of empathy and total understanding of your feelings as only another ostomate experiences.  WELCOME!  jb

ron in mich
Sep 04, 2025 1:37 pm

Hi, welcome to the site. Long time ostomate here. If you get a blockage, try a can of Coke to help move it along.

004dottie
Sep 04, 2025 2:23 pm

Welcome to a wonderful group of people and friends on here. I am a newcomer myself, but they have made me feel welcome. Hope you have a blessed day. 😊

infinitycastle52777
Sep 04, 2025 3:09 pm

Welcome to the group. You will find lots of advice here and get many good ideas for troubleshooting problems.

Hunny
Sep 04, 2025 4:08 pm

Hello and welcome, welcome, glad you're here. I also have a colostomy. As far as food goes, I was told by my ostomy clinic that I can eat whatever I want as long as I “chew, chew, chew” - so whatever I would normally eat is how I took it.
I still hear that in my head when I eat. I haven't had any blockage issues; I can eat any food. I do my best to chew well, but I seem to just go back to how I have always chewed, then I hear Rick's voice again with the chew, chew, chew. With that said, I was also told by my team that I need to drink Miralax (I use the Costco Kirkland version) that works well for me to not let the output get too thick or stodgy. It works well for me, and I definitely feel a difference if I don't take it. Hope that helps…

Hugo
Sep 04, 2025 4:44 pm

Welcome! Glad to have you. I also have a permanent colostomy. Regarding your diet, eat small amounts of food to see how your body reacts to them. You may also want to keep a food diary. Some of us can eat just about everything we ate before getting an ostomy, while others, like me, are somewhat restricted. We are all different. It's all just trial and error.

TerryLT
Sep 04, 2025 8:12 pm

Welcome to our group! You will find a wealth of information here, as well as support and friendship. As Hugo says, we are all different when it comes to diet and possible restrictions. You will get to know your own body in time and learn what you can and cannot tolerate, so there is a learning curve. The main things to remember are to eat slowly, chew really, really, really well, and stay hydrated. It's less common to have diet restrictions with a colostomy, but it does happen, and it's most often due to scar tissue. Eat small portions of foods you haven't tried yet to see how you react. Take it slow. You'll get there.

Terry

TerryLT
Sep 05, 2025 9:03 pm

Just something I'd like to add. Some ostomates will tell you not to eat this or that. It's a shame to deprive yourself of something you really like, and it may well be that whatever foods you are being told to avoid wouldn't cause you any problems at all. We are all different. Don't be afraid to try everything; just be careful.

Terry

Past Member
Sep 06, 2025 1:32 pm

I have been too; I tried to Google and found it more confusing.

Redondo
Sep 07, 2025 2:29 am

Hi

Welcome.

I have had an ileostomy since 1973. What kind of advice are you seeking?

sharondave
Sep 07, 2025 6:08 pm

Hi Amethyst.

So I have had a colostomy for 25 years. What to eat can be finicky because we are all so different in what we tolerate. What has worked for me is to try one new food at a time so I know what I can and cannot tolerate. Some examples: Nuts cause me a blockage every time; I've had two. So now I put the nuts in a food processor and add them to smooth peanut or almond butter or sprinkle them on food I eat. Voila, no blockage. In that way, I don't have to give up a food I love. However, I cannot eat raw vegetables with a dip. The veggies have to be steamed at least. Also, the peels on some fruits are difficult to digest, like apples and pears. Some ostomates tolerate salads very well, but I just avoid them. I find spinach is very stringy, and I don't tolerate it well at all. The same goes for celery, but if it's cut up and cooked well, it's OK. The biggest thing to remember is to chew, chew, and chew again. Hope this helps a little. Sharon

SharkFan
Sep 07, 2025 11:59 pm

Good afternoon, Amethyst,

You've come to the right place. No such thing as a dumb question. You will find advice on any question you ask. You have a home. Many good people are here, some even with a great sense of humor. Don't be shy.

Best of health to you and welcome,

SharkFan

GraceFalls
Sep 08, 2025 1:08 am

Do this!

Eat what you love in small quantities to begin with.

The crazy thing about having a stoma is you really see how foods are digested...or not.

I learned much from emptying that pouch. :)