This topic is about seeking information and personal experiences related to parastomal hernia repair surgery, particularly from those who have undergone the procedure. A person with a long history of living with an ileostomy due to ulcerative colitis is looking for insights into the surgery's outcomes and recovery process. Here are some shared experiences and advice from others:

1. Recovery time can vary. One person returned to a mostly sitting job within 3-4 weeks, although their surgeon recommended 8 weeks off.

2. Some people have had positive experiences with hernia repair using mesh, though it can result in the stoma becoming flush or flat, which might require using a convex appliance for management.

3. There is a possibility of hernia recurrence or the formation of new hernias, which might necessitate further surgeries. Lifelong lifting restrictions are often advised after repair.

4. Complications can include the stoma losing its protrusion, which increases the risk of leaks. Once mesh is implanted, its removal is very difficult, and repairs can sometimes lead to new obstructions or bowel issues.

5. Many opt for a conservative approach, choosing to "watch and wait" unless there is an obstruction or severe leakage. Support garments like ostomy belts can help prevent worsening and control leaks. Limiting heavy lifting and maintaining core support are also recommended.

6. Those with active jobs or hobbies might face a higher chance of recurrence and may prefer to delay surgery to avoid downtime and future restrictions.

7. Hospitals can suggest hernia repair, but the decision is elective unless there is an acute complication.

8. For those considering alternatives to a stoma, options like a J-pouch or Kock pouch are discussed, but they may not be suitable for immune-compromised patients or those with extensive disease. Some choose to remain with a permanent ileostomy.

For more information, the United Ostomy Associations of America (UOAA) offers a webinar on parastomal hernia surgery, which can be accessed on their website. Additionally, products like the New Hope Ostomy Belt are available and can be prescribed in some regions.