Topic Explanation
The forum discussion revolves around a user contemplating whether to undergo colostomy surgery due to neurogenic bowel issues stemming from a spinal cord injury. The user experiences frequent bowel accidents and is seeking advice on whether to proceed with the surgery or explore alternative treatments like dietary changes.
Advice and Insights
1. Positive Experiences with Colostomy:
- Several users shared that their quality of life significantly improved after getting a colostomy.
- Users reported regaining control over their bowels and reducing the frequency of accidents.
- Some users wished they had opted for the surgery sooner.
2. Comparison with Ileostomy:
- There is a distinction between colostomy and ileostomy, with colostomy generally having thicker output and being easier to manage.
- Ileostomy output is more liquid and acidic, requiring more maintenance and posing a higher risk of leaks.
3. Dietary Changes:
- One user strongly advocated for a strict diet to manage neurogenic bowel issues, suggesting a low-carb, no-sugar, no-grains, and no-dairy diet.
- Psyllium husk was recommended by a couple of users to help bulk up stool and manage bowel movements.
4. Surgical Considerations:
- Some users mentioned the possibility of a reversal surgery but noted that they preferred not to revert to their previous condition.
- The importance of stoma placement and the surgeon's expertise was highlighted as crucial for a successful outcome.
5. Personal Experiences and Emotional Support:
- Users shared personal stories of dealing with bowel issues and the emotional toll it took on their lives.
- The forum provided a space for emotional support, with users expressing empathy and understanding of the challenges faced.
6. Practical Tips:
- Users discussed the practical aspects of living with a colostomy, such as managing gas and leaks.
- The use of products like Meta Mucil and Banatrol was suggested to help manage bowel consistency.
7. Quality of Life Improvements:
- Many users emphasized the significant improvement in their quality of life post-surgery, including being able to engage in activities like traveling, working, and socializing without the constant worry of accidents.
8. Concerns and Considerations:
- Some users expressed concerns about the long-term implications of living with a colostomy, such as the potential for skin infections and the need
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