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Mar 24, 2024

Struggling with Decision - Colostomy vs. Alternative Treatments for Neurogenic Bowel

This topic is about making a decision between opting for a colostomy or continuing with non-surgical options to manage a neurogenic bowel condition after a spinal cord injury. The person involved has been dealing with this condition for many years and is seeking advice and support to make an informed choice. Here are some insights and advice shared by others who have faced similar situations:

- The individual has been living with a flaccid, areflexic neurogenic bowel for 27 years, experiencing frequent uncontrolled leakage, especially with loose stools. Current management includes medications and dietary adjustments, but these only provide short-term relief.

- Surgery for a permanent colostomy has been approved, but there is hesitation about whether all non-surgical options have been fully explored. Alternatives like diet changes, medications, and anal irrigation are being considered.

- The person is 57 years old, ambulatory, and otherwise healthy, with a desire to travel without the fear of public accidents. They have a history of inguinal-hernia mesh repair, which causes pain with hard stools.

- There is interest in trying Peristeen anal irrigation as a last non-surgical option and exploring a detailed diet plan before making a final decision.

- Concerns about managing ostomy gas and flatulence compared to rectal passing have been raised.

Advice and insights from others include:

1. Quality-of-life improvements from having a stoma are significant. Many people report regaining control over their lives, ending public accidents, and being able to engage in activities like traveling, working, and even climbing mountains.

2. Differences between colostomy and ileostomy are noted. Colostomy output is thicker and less acidic, making maintenance easier, while ileostomy output is liquid but manageable with the right products and routine.

3. Diet-based approaches can be effective. A strict low-carb diet has been suggested to eliminate loose output, with resources available for guidance. Psyllium husk supplements are also recommended by some.

4. Medications and products that may help include loperamide, bismuth subsalicylate, Banatrol, and psyllium husk. The Peristeen Anal Irrigation system is another non-surgical option to consider.

5. Appliance management tips include using 2-piece systems for easier pouch emptying, replacing filters to manage gas, and ensuring proper stoma placement by a skilled surgeon.

6. Additional insights highlight the psychological ease of managing a stoma, the potential for parastomal hernia, and the benefits of online ostomy communities for emotional support and practical advice.
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