This topic is about a UK ostomate who found a solution to frequent nighttime leaks caused by gas build-up. Despite trying various pouch brands and sizes, the leaks persisted until they discovered CliniMed's Ultraframe flange-extender strips. Here are some insights and advice shared by the user:
- The Ultraframe strips are ultra-thin and nearly invisible on the skin. They are applied all around the pouch flange, and the user suggests placing them side-to-side rather than top-to-bottom.
- Since using Ultraframes for 18 months, the user has experienced no leaks, even when the pouch inflates significantly.
- The user previously tried Coloplast "banana" strips but found them unstable and ineffective.
- A non-monetized YouTube review is available for more information.
Additional insights and advice include:
- Some members in the USA and France have difficulty accessing Ultraframes. The originator is looking into possible solutions.
- In the UK, patients can switch suppliers to CliniMed or others, who will deliver preferred items after GP approval. Trials are available before committing.
- The originator is experimenting with reducing carbohydrates to decrease gas, following another member's suggestion.
- They are also seeking an adhesive product that heals sore skin under the flange.
- The video link contains product URLs for international orders.
For obtaining alternative products:
- In the UK, contact your stoma nurse or GP with product codes. If the manufacturer meets NHS standards, they can be added to your prescription. Suppliers include CliniMed, Coloplast, Dansac, Hollister, and Salts, with delivery services like Fittleworth Ltd and Charter.
- In the USA and other countries, contact manufacturers directly for samples, as many ship internationally. Medical-supply stores can order different brands with a doctor's prescription. Be aware of regulatory hurdles that may block some imports.
Diet tips to reduce pouch gas:
- Eating early and sharply limiting carbohydrates can help reduce overnight gas and ballooning.
Using Ultraframes efficiently:
- Some users cut each strip in half and apply them only where the flange tends to lift, such as over a midline scar.
- They can be used full-circle post-surgery until swelling subsides and also work as an emergency dressing for minor skin burns.
Functional caution:
- Ultraframes are designed to prevent the flange edge from lifting due to sweat or water, not to trap stoma output. If output gets under the barrier, change the appliance promptly to avoid skin damage.
Other helpful products mentioned:
- Coloplast Brava range, Rhodes Stocare, and Eakin Freeseal for skin protection and sealing.
- Try different adhesive removers if a brand stings.
General tips:
- A "stoma nurse" in the UK is equivalent to a "wound-care nurse" in the US.
- Joining Facebook groups like Ostomy Lifestyle Athletes can provide positive, practical support.
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