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May 01, 2024

New Colostomate - Overwhelmed by Post-Surgery Challenges and Seeking Advice

This topic is about someone who recently had a sigmoid colostomy and is facing challenges with leaks, severe swelling, and finding the right products just two weeks after surgery. They had the procedure after dealing with pelvic-floor dysfunction and other related issues for many years. Now, they are trying to manage their new situation while preparing to return to work. Here are some helpful insights and advice shared by others:

1. Swelling and Possible Obstruction or Hernia
- "Sugaring" is typically used for prolapsed stomas, not regular swelling. It's important to find out why the stoma is enlarged.
- Keep an eye on the output to ensure it remains normal, as severe swelling might indicate an obstruction.
- The bulge near the stoma could be a developing peristomal hernia, which others have experienced as well.

2. Product and Fit Troubleshooting
- Consider using moldable wafers that adjust automatically instead of cutting oversized holes. Some options include ConvaTec Natura Durahesive Moldable Two-Piece Skin Barrier and Hollister FormaFlex moldable barriers.
- Try using Eakin Cohesive Stoma Wrap or oversized Eakin rings to wrap around the stoma instead of overstretching a small ring.
- Order free samples from companies like ConvaTec and Hollister, which often include wafers, adhesive, remover wipes, and belts.
- A belt can help keep the appliance snug, and both ConvaTec and Hollister offer free ostomy belts.
- Some people have success with combinations like a Hollister flat 2-piece wafer with a Coloplast Brava moldable ring and 3M Cavilon spray.
- When cutting the wafer opening, make it about 1/8 inch (3 mm) larger than the stoma to accommodate swelling.

3. Application Technique Tips
- Warm the wafer or barrier ring against your body or with a hair-dryer before applying it.
- Press the wafer firmly for at least one minute in different positions to improve adhesion.
- Create a small pleat in the pouch outlet before folding the Velcro closure to make emptying easier.
- Use a small paper-binder clip on the folded drain tail for extra security.
- Change the wafer every 5–7 days to protect the skin, but bags can be changed more often.
- Shave peristomal hair with an electric trimmer to reduce skin trauma.

4. Skin Care
- Frequent changes can inflame pristine skin quickly, so limit changes and use barrier products like 3M Cavilon and Brava rings.
- Address any leakage promptly to prevent skin irritation.

5. Healing Expectations
- Stomas usually shrink over time, but some may remain large, and size can fluctuate with peristalsis.
- Post-operative swelling and hernias are common; support belts like Nu-Hope hernia/prolapse belts can help mask bulges for outings.

6. Work and Leave Considerations
- It's important to take adequate recovery time, as returning to work too soon has led some to hospital readmission.
- Termination after major surgery may violate employment law, and legal action could be an option.
- Remember, "There are many jobs; you only have one health"—prioritize healing.

7. Emotional Support
- Leaks and uncertainty are normal in the early stages, but things improve as you find a routine and suitable products.
- There are many YouTube channels and online resources that offer visual guides and peer advice.
See full discusison
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