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May 19, 2024

Tips for Managing an Ileostomy on a Boat Trip

This topic is about managing a high-output ileostomy while enjoying a summer holiday on a wake boat. The person sharing their experience spends their holidays on a small boat that often ties up with others in a busy canal. Here are some helpful tips and advice for handling this situation:

- The person has a high-output ileostomy and usually empties or rinses the pouch every hour, adding water and oil for cleanliness and lubrication.
- In the past, the wafer has lifted in hot weather, causing leaks. There are concerns about heat, sunscreen, and splashing water loosening the barrier again.
- Main concerns include slowing intestinal output without risking obstruction, keeping the wafer/pouch secure in heat and water, and emptying the pouch discreetly when privacy is minimal and no toilet is on board.

To address these concerns, here are some suggestions:

1. Slowing/Thickening Output:
- Consult a doctor about anti-motility or motility-slowing medications like Imodium (loperamide) and codeine-based Solpadeine, and try them in advance.
- Experiment with food options that can thicken output, such as marshmallows, Rice Krispies treats, psyllium husk powder, or Metamucil.
- Stay hydrated, avoid large meals, eat lean or light early in the day, and limit intake while on board.

2. Securing the Wafer & Pouch:
- Use an ostomy belt and waterproof barrier extenders or "C"-shaped strips around the wafer to combat sweat, sunscreen, and splashing.
- Change to a fresh wafer the morning of the trip, and consider wearing a wrap or snug one-piece swimsuit for extra support.
- Use pouches with integrated filters to reduce ballooning, and choose models that accept a belt for added stability.

3. Emptying or Changing on the Boat:
A. Empty & Keep Same Pouch:
- Have someone hold up a towel for privacy.
- Empty into a plastic or paper cup, then rinse the cup overboard and clean with hand sanitizer, or pour into a Ziploc or dog-poo bag pre-loaded with kitty litter, tie it, and store in a sealable bin bag or small locking cooler.

B. Swap to a Fresh Pouch:
- If using a two-piece system, detach the used closed-end pouch, seal it, place it in a Ziploc, cooler, or butter tub, and snap on a new pouch.
- Closed-end disposable pouches reduce mess; store them in a cooler until reaching shore.

4. Portable Waste-Containment Options:
- Use a lockable lunch-size cooler stocked with large Ziplocs, paper towels, Purell, toilet paper, Dixie cups, and a spare key.
- Consider RESTOP "wag bags" designed for human waste.
- Use dog-poo bags with a scoop of cat-litter granules to gel liquid, and store filled bags in a larger bin bag or plastic jar with a lid.

5. Alternative Plans & General Tips:
- If possible, ask the captain to anchor near restroom facilities or make occasional shore stops.
- Inform close friends or family about the ostomy so they can help form a privacy "wall," hold supplies, or distract others.
- Carry extra wafers, pouches, adhesive strips, wipes, and a change of clothes in waterproof packaging.
- Practice the chosen emptying method on land first to ensure it works smoothly.
- Remember that wafer dislodging is unlikely if reinforced; many long-time ostomates find their own systems and enjoy boating without limits.
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