This topic is about the experiences and concerns some people have after undergoing ostomy surgery, particularly the feeling of a constant urge to pass stool and mucus. Here are some helpful insights and advice shared by others who have been through similar situations:
- Mucus production is normal. The rectal stump continues to secrete mucus, and small amounts may be passed periodically even after a colostomy or ileostomy. In the first few weeks, the body is also clearing out any residual stool left in the colon after surgery.
- The urge to pass stool usually lessens with time. One month post-surgery is still very early, and many people find that this sensation fades after a few months. It's common to feel a strong urge during the initial months, which can sometimes feel odd or even painful.
- Avoid straining. It's important to let the mucus build up and pass naturally. Straining can lead to discomfort and increase the risk of developing hemorrhoids.
- Persistent urgency can be caused by conditions like tenesmus, proctitis, or diversion colitis. These inflammatory conditions in the unused rectum can create a constant need to go, along with blood-streaked mucus and pain. Treatments like Prednisolone or Mesalazine suppositories may be recommended, and regular follow-ups, such as sigmoidoscopies, are advised to monitor the health of the rectal stump.
- Seek medical review if you experience ongoing bleeding, pain, or large mucus or stool output. These symptoms should be assessed by your colorectal team, as they may indicate conditions like proctitis or developing Crohn’s disease. Some care teams perform rectal examinations every six months.
- Surgical options are available if problems persist. Procedures like a proctectomy with anus closure, sometimes referred to as "Ken Butt" or "Barbie Butt," can eliminate mucus and infection risks but involve a challenging recovery. A J-pouch is another option for some patients with ulcerative colitis, depending on the health of the rectum. Factors like the frequency of infections, severity of inflammation, and impact on quality of life are considered when deciding on surgery.
- Practical coping tips include using sanitary pads or similar protection if mucus leakage soils your underwear. Stay in close contact with your ostomy or IBD nurse team for medication adjustments and ongoing support. Remember to maintain hope and patience, as many people find that the situation improves significantly as healing progresses.
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