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Jun 29, 2024

Adjusting to Life with a Colostomy Bag - Seeking Advice

This topic is about someone who recently had emergency surgery for severe diverticulitis and now has a colostomy. They are looking forward to a possible reversal in about six months but are currently struggling with the task of changing their colostomy bag due to feelings of nausea when looking at the stoma. Their goal is to become self-sufficient in managing their colostomy.

Here are some helpful tips and advice for overcoming this challenge:

1. Gradual Desensitization
- Start by looking at stoma photos or videos online, then gradually progress to looking at your own stoma through the pouch, and eventually try changing the wafer yourself.
- Regularly expose yourself to the stoma to speed up acceptance.
- Use distraction techniques like holding an ice cube in your mouth or trying hypnotherapy to help reduce nausea.

2. "Tough-Love" Approach
- Encourage your wife to step back, or have nurses insist that you do the changes yourself. This necessity can help overcome hesitation.
- Remind yourself that you would manage on your own if you had to.

3. Mindset and Acceptance
- Think of the stoma as a lifesaver and a temporary solution.
- Be prepared for the possibility that the reversal might be delayed or canceled, and research the procedure and potential complications.
- Use language that makes you more comfortable, like calling it "output" instead of "poop."

4. Practical Change Routine
- Change the appliance first thing in the morning or before meals when output is low.
- Many find it easier to change and clean in the shower for simple rinsing and cleanup.
- Have all your supplies ready, take your time, and find a comfortable position. Keep gauze handy in case the stoma becomes active, and wait until it quiets before sealing the appliance.
- Measure the stoma each time until its size stabilizes, and cut the wafer accordingly.

5. Odor and Comfort Tips
- Use filtered pouches and room or linen sprays to control odors.
- Remember that what's in the pouch is just digested food.

6. Product and Equipment Suggestions
- Two-piece, filtered pouch systems are highly recommended.
- Convex baseplates often provide a better seal for colostomies.
- Consider using the Coloplast Mio Sensura system with specific product codes for pouches and baseplates.
- Use skin-prep and sealing accessories like adhesive wipes or sheets and barrier film spray for better sealing.

7. Encouragement and Perspective
- Many people initially felt repulsed but quickly adapted once they took charge.
- Those living alone managed out of necessity and now feel empowered.
- Activities like camping, road trips, and using public toilets can be easier with a stoma and a well-sealed pouch, which can be an unexpected advantage.
See full discusison
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