This topic is about someone who is dealing with the challenges of life after a colostomy, particularly after experiencing a frustrating incident following a day out. They are also facing the possibility of surgery with low success rates and are seeking support and advice from others who might understand their situation. Here are some helpful insights and advice shared by others:
1. Slow down intake and identify triggers:
- Even a single alcoholic drink, standing for long periods, and holiday stress can lead to increased output or accidents. Try eating smaller, slower meals and limit alcohol when out.
2. Rest and pace yourself:
- Over-exertion might not be felt immediately. Plan for breaks and allow time to recover after activities like shopping or social events.
3. Keep busy with manageable projects for distraction:
- Engaging in simple tasks, such as repainting a room, can improve your mood and help keep your mind off setbacks.
4. Use accessories to prevent or limit leaks:
- Consider using an IGGIE clip for bag-drain security to protect clothing and bedding when the pouch fills unexpectedly. Keep an eye on the pouch after consuming "fun" foods.
5. It gets easier over time:
- Those who are more than two years post-op say that confidence grows. While leaks, gas, and bulges still occur, they become easier to manage. Focus on survival and small positives.
6. Self-care after accidents:
- Clean up, change appliances, and move on. Don’t dwell on occasional mishaps. Emotional "pity parties" are normal and shared by many.
7. Emotional support:
- The community understands and offers hugs and empathy. Remember to be grateful and celebrate small wins, like spending holidays with family or enjoying time with pets.
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