This topic is about someone who had their entire colon removed in April and is now dealing with inflammation and leakage from the remaining rectal stump. Their ileostomy is working well, but the rectal stump is causing issues by leaking bloody mucus. The surgeon is puzzled by the bleeding, as there should be no blood flow there. The person has a long history of ulcerative colitis or Crohn’s disease and is hoping the inflammation will settle down so they can consider a J-pouch in the future. They are seeking advice from others who have been through similar experiences.

Here are some insights and advice shared by others:

1. It's common for the rectal stump to remain inflamed and bleed in cases of ulcerative colitis or Crohn’s disease, even after the colon is removed.

2. Some suggest considering the complete removal of the remaining rectum and anus, known as "Ken butt" surgery, and living with a permanent ileostomy to stop the rectal disease and leakage.

3. Many advise against opting for a J-pouch when Crohn’s disease is present, as there are high failure rates and issues like cuffitis or pouchitis, along with repeated flares.

4. People report that life with a well-functioning ileostomy is much better compared to years of medication, steroids, and active inflammatory bowel disease (IBD).

5. Even after a proctectomy, IBD can show up in other parts of the body. It's important to watch out for joint pain, skin issues, eye inflammation, and to keep up with regular check-ups with a gastroenterologist.

6. Experiences can vary widely. Some people have no rectal issues while having a stoma, while others face significant problems. It's crucial to have a thorough examination and personalized surgical planning.