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Jul 03, 2025

Considering Ileostomy Reversal: Seeking Advice and Experiences

This topic is about someone who has been living with an ileostomy for two years and is now considering whether to undergo a reversal surgery. Their recent medical tests show that their bowel has healed, and their surgeon has offered the option of a reversal. However, they are feeling uncertain after reading about potential post-reversal issues and are seeking real-life experiences to help make their decision.

Here are some insights and advice shared by others:

- Some people find that staying with a well-functioning ileostomy is less stressful than dealing with possible complications and frequent trips to the bathroom after a reversal. One person shared that they chose to keep their permanent ileostomy after a problematic J-pouch experience and are happy with that decision.

- Outcomes can vary greatly from person to person. While some individuals do very well after a reversal, others may regret it. It's difficult to predict which group someone will fall into.

- The reason for the original ileostomy can influence the decision. For instance, someone who had a stoma due to emergency surgery opted for a reversal to regain a sense of "normality" and had a positive experience, with bowel function returning in just three days and no ongoing issues with urgency or frequency.

- It's important to consider your personal quality of life, how well you are managing your current stoma, and your medical history when making this decision.
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