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Jul 13, 2025

Concerns About End Ileostomy Reversal with Limited Large Intestine

This topic is about a person whose wife is preparing for an end-ileostomy reversal surgery. Due to previous complications, she now has only 11 inches of her large intestine left, which brings certain concerns and expectations. They are seeking advice and experiences from others who have been through similar situations.

Here are some insights and advice shared by others:

1. Concerns about frequent and loose bowel movements, as well as urgent trips to the bathroom, are common. The surgeon has indicated that while these issues may improve over time, they might not completely return to normal.

2. The surgical plan involves creating a loop ileostomy in August, allowing the reconnection to heal for about three months, and then removing the loop around the holidays.

3. Some people have chosen to keep their ileostomies due to the risk of constant, watery output and potential skin irritation when only a small portion of the colon remains.

4. The length of the rectum can be crucial for a successful reversal. It's important to discuss rectal capacity with the surgeon.

5. Positive outcomes have been reported even with significant colon loss. For example, one person with only about 8 inches of colon functions well, managing frequency with diet and planning. Another person, missing part of their colon but with a full rectum, is doing well two years post-reversal.

6. Initially, there may be higher frequency and urgency after surgery, but many people experience gradual improvement over time. Monitoring diet, especially avoiding foods that speed up digestion, can help manage these issues.

7. Skin care is important due to the more liquid and acidic nature of the output. Using barrier creams or wipes can help protect the skin if the reversal proceeds.

8. Consider the quality of life with the current ileostomy compared to potential bathroom urgency after reversal. Personal priorities and lifestyle preferences play a significant role in this decision.

9. Emotional support is available, with several people offering to share their experiences privately to help the couple make an informed decision and prepare for what lies ahead.
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