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Aug 30, 2025

Perimenopause and Ileostomy: Seeking Advice and Experiences

This topic is about navigating the challenges of perimenopause while living with an ileostomy. The person sharing their experience has had an ileostomy for over 30 years and is now facing new symptoms like belly aches, bubbling, and pain as they enter perimenopause. They are unsure if these symptoms are due to hormonal changes or a new medical issue and are seeking advice from others in similar situations.

Here are some helpful insights and advice:

1. General medical guidance:
- Hormonal changes during perimenopause, such as drops in estrogen, can affect digestion, skin, and cause pain. It's important to consult a doctor if you experience new or worsening pain.
- Be mindful of dehydration and electrolyte imbalance during hot flashes or night sweats, as fluid loss is already a concern with an ileostomy.

2. Skin and appliance issues:
- Declining estrogen levels may cause skin to thin and dry, affecting wafer adhesion and increasing sensitivity. If your usual products start causing irritation, consider trying different barriers or skin-prep routines.

3. Output, gas, and blockage management:
- Hormonal fluctuations can affect gut motility, leading to periods of thick, sluggish output or high-volume watery output. This can increase the risk of blockages or leaks.
- Bloating and gas may cause ballooning and louder stoma noises. Venting pouches or using filters might help.
- Slow digestion due to high progesterone can increase the risk of partial blockages. Watch for symptoms like crampy pain, reduced output, or a swollen stoma.

4. Pain differentials to consider:
- Hormone-driven intestinal sluggishness, increased visceral sensitivity, or bloating from water retention.
- Ostomy-specific issues that may be intensified by hormones, such as partial food obstruction or peristomal skin problems.
- Non-ostomy gynecologic causes common in perimenopause, like ovarian cysts or uterine fibroids, can also cause abdominal pain.

5. Overlapping symptoms of perimenopause and ostomy life:
- Symptoms like fatigue, abdominal cramping, sleep disturbances, mood swings, and appetite changes can stem from either condition. Tracking patterns may help identify the cause.

6. Hormone therapy and professional support experiences:
- Some women consider estrogen therapy, while others avoid it due to cancer history or lack of guidance. Finding a menopause-literate provider and using reputable resources can help fill knowledge gaps.

7. Supplements and lifestyle aids:
- Supplements that support mood can help with perimenopausal irritability.
- Staying hydrated with added electrolytes is crucial, especially after night sweats or high-output episodes.
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