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40,880 members
Apr 17, 2009

Chronic Pain with Crohn's Disease: Seeking Advice and Natural Remedies

Topic Explanation:
The discussion revolves around a 48-year-old woman with Crohn's Disease who has an ileostomy. She is experiencing constant upper back and abdominal pain, which previously only occurred with a blockage but now happens every time she eats. Despite undergoing procedures to dilate her small gut twice in the last three months, she has found no relief. Her doctors are suggesting surgery to remove a portion of her intestine below her stoma and to start treatment with Remicade or Humira. She is hesitant about these options and is seeking advice from others with similar experiences, particularly regarding these drugs and any natural remedies.

Extracted Advice and Helpful Insights:
1. Medication Experiences:
- One user shared their experience with Humira for back pain related to Crohn's, indicating that it might help with such symptoms.
- Another user discussed their use of Remicade, which has helped manage their Crohn's symptoms since 2001, although they also mentioned becoming dependent on pain medication due to side effects from long-term steroid use.

2. Surgical Outcomes:
- A user mentioned undergoing surgery after which they experienced relief, although they had issues with sore skin around the stoma.

3. Potential Complications from Medications:
- Multiple users who tried Remicade reported significant side effects, including one who developed signs of Multiple Sclerosis, leading them to reconsider continuing the treatment.

4. Additional Medical Checks:
- It was suggested to check for possible infections, such as parasites, especially since the symptoms worsened after a trip to Mexico. Consulting with a doctor about conducting cultures to screen for pathogens was recommended.

5. General Recommendations:
- Users emphasized the importance of discussing all symptoms and concerns with healthcare providers to explore all possible underlying causes and treatment options.
- Considering the addictive nature of some pain medications, caution was advised when using such treatments for managing symptoms.
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