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Nov 29, 2011

Seeking Advice - J-Pouch Surgery for FAP - Weight Concerns & Surgeon Issues

Topic Explanation
The forum topic is about a person suffering from familial adenomatous polyposis (FAP) who underwent a colectomy and was advised to have a J-Pouch surgery. However, the initial surgery attempt resulted in complications due to the surgeon's concerns about the patient's weight. The patient is seeking advice on successful J-Pouch surgery for individuals with similar weight concerns and is looking for recommendations for a new surgeon.

Advice and Insights
- Seek another surgeon who is more understanding and willing to work with the patient's current weight.
- Consult with an ostomy nurse to find a surgeon who is more flexible about weight issues.
- Get multiple opinions and find the best surgeon before agreeing to any more surgery.
- Consider reaching out to specialists who have experience with FAP patients, such as Dr. Stephen Wexner at the Cleveland Clinic in Ft. Lauderdale, Florida.
- Contact the Crohn's and Colitis Foundation for recommendations on experienced surgeons.
- Consider seeking a second opinion from a different surgeon, especially one who has experience with FAP patients and successful reconstructions.
- Reach out to the patient's gastroenterologist for recommendations on other surgeons.
- Consider contacting Dr. Joel Bauer or Dr. Gorfine at Mount Sinai in NY for a second opinion or potential surgery.
- Share experiences and recommendations about surgeons to help others in similar situations.
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