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Sep 02, 2012

Ileostomy Reversal Experiences and Advice Needed

This topic is about someone who had a colectomy due to recurrent C. difficile infections and is now considering whether to have an ileostomy reversal. They are looking for advice and experiences from others who have faced similar decisions. Here are some insights and advice shared by others:

1. Permanent Ileostomy Perspective:
- One person decided to keep their ileostomy permanently after severe C. diff infections damaged their colon and large intestine.
- Concerns influencing this decision included reports of ongoing diarrhea after reversal, severe anal skin irritation, and some patients needing to revert to an ileostomy.
- It's important to remember that without a colon, the output will remain liquid, and a reversal won't result in formed stools.
- This person had a history of serious health issues, including ICU stays, MRSA and stage-IV staph infections, multiple abdominal surgeries, and long-term Vancomycin treatment. They felt additional surgery was too risky.

2. Pro-Reversal Experience:
- Reversal is possible, but recovery can be slow, so it's important to manage expectations.
- Some helpful tips include introducing food gradually, maintaining high fluid intake, and understanding that post-operative pain is mainly from the surgical incision and abdominal work, not the reconnection itself.
- The outcome was described as "close to normal," and the person was "thrilled" with the results, though initial healing required patience.

3. General Considerations:
- It's crucial to evaluate your current overall health and any previous surgical trauma when making this decision.
- Consider the lifestyle trade-offs, such as potential increased toilet frequency and skin issues versus living with an ostomy appliance.
- Gather comprehensive information on possible complications, such as chronic diarrhea, the need for further surgery, and the risk of infections.
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