This topic is about someone seeking support and connection with others who have undergone pelvic exenteration, a major surgery often considered a last-resort treatment for certain cancers. The person sharing their story was diagnosed with vaginal cancer in 2004 and, after various treatments, faced a choice between hospice care and this extensive surgery. Choosing surgery allowed her to continue caring for her family, but it also left her with significant life changes, including living with an ostomy. She is now looking to connect with others who have had similar experiences.

Here are some insights and advice shared by others who have been through this journey:

1. Pelvic exenteration is a severe, life-saving procedure often used as a last resort. Understanding its seriousness can help set realistic expectations for recovery and adaptation.

2. Sharing personal experiences with others, whether through organizations like the American Cancer Society or directly with healthcare providers, can be healing for both the person sharing and those who are newly facing similar challenges.

3. Recovery from this surgery is challenging, but adapting to life changes is possible. One person shared their experience of adjusting to living with a permanent urostomy and colostomy, emphasizing the importance of patience during this process.

4. Keeping a positive focus on family, future goals, and enjoyable activities like holidays can be crucial for maintaining motivation and a sense of purpose during recovery and adaptation.