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Feb 16, 2013

Severe cramps and bleeding after ileostomy - seeking advice

This topic is about dealing with severe rectal cramps, bleeding, and discharge after having an ileostomy. The person who shared their experience had the surgery in September 2010 and has been feeling "phantom-poo" sensations daily. Recently, these sensations have turned into severe cramps, pain, bleeding, and what seems like stool discharge. They are seeking advice from others who might have faced similar issues.

Here are some insights and advice shared by others:

1. Many people experience similar symptoms after surgery, such as passing blood, congealed blood that looks like stool, or large amounts of mucus. This can last for up to nine months. Rectal pain might be related to a rectal prolapse.

2. It's important to consult with a healthcare professional like an ostomy nurse, colorectal surgeon, or gastroenterologist. They can help identify the cause, whether it's a prolapse, retained diseased rectal stump, active inflammation, or infection, and suggest a treatment plan.

3. Some have found relief through gentle rectal irrigation, which can help flush out retained mucus or blood and reduce pain. Keeping track of the frequency, color, and volume of the discharge can also help doctors determine what it is.

4. If conservative measures don't work, some people have had surgery to remove the remaining colon or rectum. This has resolved pain and discharge issues for them.

5. There is an educational resource available, a "Rectal Discharge" factsheet, which explains the causes of mucus, bleeding, and other discharge after an ostomy and outlines management options.

6. If pain, bleeding, or stool-like discharge persists or worsens after an ileostomy, it's important to reassess the situation. Surgical removal of the remaining rectum or other revisions can be an effective solution when other options don't work.
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