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Jun 26, 2013

Recurring kidney stones with ileostomy - seeking advice

This topic is about dealing with recurring kidney stones in people who have had an ileostomy for a long time. The person sharing their experience has been living with an ileostomy since 2005 and continues to face the challenge of kidney stones, despite taking steps like drinking plenty of water and being mindful of their diet. They currently have a stone in their right kidney and are seeking advice before starting treatment.

Here are some helpful insights and advice:

1. **Hydration is Key**
- Drink water regularly, even before you feel thirsty, to keep your urine pale in color.
- In hot weather or during long activities, increase your intake of fluids and electrolytes. Sports drinks can help replenish salts lost through an ileostomy.

2. **Understand Your Stones**
- Have each kidney stone analyzed to understand its composition, such as calcium oxalate or calcium phosphate.
- For calcium stones, moderate your intake of high-oxalate foods and dairy, and limit added salt.
- For uric acid stones, reduce high-protein and red meat consumption.
- Avoid large doses of vitamin C and add natural citrate, like lemon or lime, to your water to help prevent calcium stones.

3. **Consider Supplements**
- Lecithin supplements, which contain choline and inositol, may help prevent stone formation. Some people have reported being stone-free for decades after starting lecithin.

4. **Protect Your Kidneys**
- Timely removal of stones and preventive measures are crucial to avoid damage to the kidneys.
- Ureteral stents can help keep urine flowing while stone fragments pass.

5. **Lifestyle Adjustments**
- Avoid spending long periods in hot environments that can lead to fluid loss.
- Keep an eye on your urine color and volume to catch early signs of dehydration.

6. **Pain Management and Medical Advances**
- Kidney stone pain can be severe, but modern treatments like lithotripsy and stenting can provide effective relief.
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