This topic is about a person who found life-changing relief from severe dehydration and other symptoms by using Questran (cholestyramine), a medication that helps manage bile salt loss after extensive bowel surgery. Here’s a summary of their experience and some helpful advice:
- The person experienced severe dehydration, constant watery output, and rapid weight loss despite consuming a high-calorie diet. They felt weak, dizzy, and were concerned about kidney failure.
- After consulting with their long-time ostomy nurse, it was suspected that the symptoms were due to the loss of bile salts. The nurse recommended Questran.
- Getting a prescription was challenging. The primary-care physician refused, so the person turned to their surgeon, who promptly arranged for the medication.
- The initial taste of the medication was unpleasant, but letting the mixture stand longer improved its taste.
- Within three days of starting Questran, the frequency of needing to empty the ostomy bag decreased significantly, stool consistency improved, and symptoms like hunger, nausea, and excessive thirst were alleviated.
- The person is still recovering strength after multiple surgeries but describes Questran as a "wonder medicine" and encourages others with similar symptoms to discuss it with their doctor.
Additional considerations and advice include:
1. Be aware of potential side effects, such as the erosion of tooth enamel. It is recommended to rinse or brush teeth after taking the medication.
2. There is a risk of bowel obstruction, so it’s important to stay alert for any related symptoms.
3. The person plans to have blood tests to assess any potential permanent kidney damage due to prior dehydration.
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