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41,452 members
Jan 15, 2014

Hole in Stoma, Need Advice!

This topic is about someone who has discovered a hole in their stoma, which is causing unexpected leaking and air passage. They are planning to have surgery to fix it, but it might not happen until February. This situation is understandably causing some anxiety, but they trust their doctor to find a solution.

Here are some helpful insights and advice shared by others:

1. The person currently has a BCIR (Barnett Continent Intestinal Reservoir) that was created in 2002. Despite some tough times, they are happy with it and find it much better than the external ostomy they had in 1997.

2. They are open to questions about the BCIR or their surgical experiences, inviting others to learn from their journey.

3. Some members suggest that the hole might be a fistula, which can occur due to infection or conditions like Crohn’s disease. They recommend researching fistulas and treatment options before deciding on surgery.

4. There is a supportive community available to offer advice and share experiences about ostomy or fistula surgery, recovery, and daily life management. They are ready to answer any detailed questions based on their own experiences.
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