Parastomal Hernia Repair Experiences and Advice

Hi all, the surgeon recommends parastomal hernia repair. I am getting a second opinion soon from my original surgeon from 12 years ago. Has anyone had a repair, and how were the results?

I've not had a repair, but others have. I do know that the rate of recurrence is high. I was told that they avoid repairs unless they are causing problems. I'm glad you are getting a second opinion.

G-Day afriendindeed,

Yes, I had a parastomal hernia repair just over 2 years ago, and it's been a great success. My surgeon was old school and did not like mesh, which a lot of surgeons use. He said 1. It can move inside after the operation and cause problems, and 2. they can cause infection. I hope it all goes well for you.

Regards, IGGIE

Is the hernia giving you discomfort or problems? I have one as well, and other than an obvious bulge, which can be flattened with the belt, mine has not caused any issues. I rarely use the belt as it is most uncomfortable for me. I avoid any surgery, hospitalization, doctors, and medication at all costs; however, I admit, pain would thoroughly change my attitude.
All surgeries are major and should be carefully reviewed in terms of the end result….jb

I had a parastomal hernia repair in May of this year. I also had an incisional hernia repair at the same time. It was sore for a couple of weeks for sure. I had ileus too. My stoma fell asleep and didn't wake up. That was no fun. I had to go back in the hospital for that and get an NG tube put in. That was not fun. But as for the hernia repair, I think it was okay. I am not sure it is totally fixed, though. I have a place where my stomach sticks out that I think might still be a hernia. I am not sure. So I don't know. I have mixed feelings about its success. I don't know. I don't have trouble with pouching, so that is good.

Words of Encouragement from Ostomy Advocates I Hollister

I have had 2; the first repair lasted maybe a year. This surgeon had no experience with this type of repair. The second one, with an experienced surgeon who specializes in this type of repair, has lasted since 2006. And yes, I would do it again if needed. The hernia became painful, and my bags would not stick. It was about the size of a huge grapefruit.

I am interested in this also, as I have multiple hernias. The latest CT showed, and I quote, “Complex ventral epigastric, umbilical, hypogastric, and peristomal hernias are present. These contain no unobstructed colon and small bowel segments.” I knew it wouldn't be a simple repair for me, but this is ridiculous!

Ty all for your feedback. Let's see what my old faithful surgeon suggests.

Best, afriendindeed

That is what my surgeon said! I don't know if anyone on here has had this happen. I have an abdominal wound that is non-healing from mesh from bladder surgery years ago. Now I have bloody discharge from my belly button! My surgeon had a scan recently, and I too now have a parastomal hernia. He said unless it causes problems, not to mess with it! I feel like a mummy! Susan, I read your comments and admire what you are dealing with! This site is awesome, and no one but us knows what we all deal with on a daily routine! This site is so helpful!👍❤️😉

This should be seen as a problem. Bleeding from your belly button/open wound, which can result in infection, is not cool.

I would get a second opinion from a surgeon who has experience in this type of surgery.

I agree with Maried. Find an experienced doctor and get another opinion on that open wound. This has been going on too long.