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Mar 19, 2014

Struggling with Post-Surgery Challenges

This topic is about someone who is feeling worn out and frustrated after experiencing another leak in the middle of the night, despite carefully following the instructions given by a wound-care nurse. They are questioning whether having ostomy surgery was the right decision, as they find themselves making as many trips to the bathroom as they did before the operation. They are hoping for things to improve, but so far, they haven't seen any progress.

Here are some helpful tips and insights:

1. Check and document your exact system/setup:
- Determine if you are using a 1-piece or 2-piece appliance and note the manufacturer and product numbers.
- Identify the brand of the ring or wafer you are using, as different rings may seal differently on moist or uneven skin.

2. Improve the seal and contain leaks:
- Use Coloplast Brava elastic tape around the flange to keep the edges secure; inexpensive white athletic tape from a dollar store can also be useful.
- Consider adding Coloplast Brava paste strips under or around the wafer for extra security.
- Apply Cavilon (3M Cavilon No-Sting Barrier Film) on the skin before fitting, and use a thin layer of antibiotic ointment on irritated spots if needed.

3. Manage gas and output volume:
- Learn how to "burp" the pouch to release built-up gas before it affects the seal.
- Monitor your daily fluid intake to maintain balanced hydration and note any foods that increase gas or activity.
- Keep a food diary and avoid heavy meals close to bedtime to reduce nighttime filling, which is especially helpful for colostomies but also applies to ileostomies.

4. Reduce nighttime pressure on the pouch:
- The firmness of your mattress can make a difference; a firm mattress keeps the pouch flat, while a soft, body-forming mattress might press on it and cause leaks.

5. Practical leak routines:
- If a leak occurs, clean the skin promptly to prevent irritation, especially with an ileostomy. Cover the spot with a towel and try to get back to sleep. Over time, dealing with leaks can become less stressful.

6. Emotional and peer support:
- Stress can increase bowel activity, so practice relaxation techniques and focus on taking things one day at a time.
- Consider joining a local ostomy support group or participating in online forums for shared tips and encouragement.
- Remember that many long-term ostomates initially regretted their surgery but eventually found a routine that worked for them and improved their quality of life.
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