This topic revolves around the challenges and considerations of undergoing reversal surgery for a Crohn’s ileostomy, especially when inflammation is still present and medication options are limited. Sadie, who has been living with Crohn’s disease for many years, is exploring her options and seeking advice from others who might have faced similar situations. Here are some insights and advice shared by others:

1. Reversing an ileostomy while inflammation is active is generally considered high-risk. Potential complications include recurrence of the disease, leaks, abscesses, sepsis, and possibly needing another stoma. Many would advise against proceeding with surgery under these conditions.

2. It is crucial to control the disease before considering surgery. Some have found success with biologic medications like Remicade (infliximab), which can help heal the mucosa and potentially make surgery a safer option in the future.

3. Living well with a stoma can sometimes be more beneficial than the risks associated with reversal surgery. Many people report having a great quality of life, being able to work, participate in sports, and enjoy parenting, all while wearing normal clothes. They often feel grateful for avoiding further surgery.

4. There are stories of successful reversals that later led to severe complications, such as abscesses and emergency surgeries, resulting in a permanent ileostomy. These experiences highlight the importance of caution and careful consideration.

5. It is normal to be curious about reversal early on, but over time, many people adjust and find peace with a permanent or long-term ileostomy.

6. In terms of medication, Sadie has only been offered azathioprine. However, others have noted that there are additional options for managing Crohn’s disease, such as biologics, which might help reduce inflammation and expand future treatment choices.

7. Emotional support is important. Focusing on being pain-free and healthy can be more beneficial than striving for what is perceived as "normal." Embracing gratitude and acceptance can make decision-making easier.

8. For those interested in stoma care, a resource was shared that provides helpful information on managing stoma care at home: successwithrbm.empowernetwork.com/blog/category/stoma-care-at-home.