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Sep 17, 2014

Phantom Sensations After Ostomy Reversal

This topic is about experiencing phantom sensations after having an ostomy reversal. The person who shared their experience is now living without an ostomy bag but occasionally feels a sensation similar to when stool was entering their ostomy pouch. This sensation occurs at the site of the former stoma, which is now just a scar. It's a strange feeling, described as "phantom poops with a ghostly bag," but it is not painful.

Here are some helpful insights and advice:

1. The sensations are infrequent and not painful. Previously, this feeling would indicate that the pouch needed attention, but now it doesn't lead to any action.

2. After the reversal, the site developed stenosis, which required another surgery. This suggests that scar tissue or adhesions might be contributing to these sensations.

3. The brain and nervous system can continue to send familiar signals even after a body change, similar to a phantom limb phenomenon. These sensations often fade as the mind adjusts.

4. Long-standing routines, like ostomy care, can leave behind residual sensations or urges until new habits replace the old ones.

5. Scar tissue and adhesions at the reconnection site might narrow the bowel or slow down peristalsis, creating unusual internal pressures or movements that mimic the former stoma output.

6. If these sensations cause curiosity or discomfort, looking into medical literature on phantom limb sensations in ostomates might offer more detailed explanations and reassurance.
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