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Nov 21, 2014

Kock Pouch Availability and Experiences in the UK

This topic is about exploring the Kock pouch, also known as a continent ileostomy, as an alternative to using an external ostomy bag. The person interested in this option is finding it challenging to gather information, as it seems the procedure is only available in Oxford within the UK. They are looking for advice or personal experiences to understand its availability and practicality better.

Here are some insights and advice shared by others:

1. One person shared their experience of having a Kock pouch constructed at Mount Sinai Hospital in New York City in 2010. They initially had a J-pouch for six years, which was successful until it developed precancerous changes.

2. Some practical considerations about the Kock pouch include:
- It often requires frequent intubation or emptying throughout the day.
- The pouch capacity might be smaller than a J-pouch due to less available tissue.
- There is a risk of leakage, and managing it requires strict attention. It's important to discuss these aspects with surgeons and gastroenterologists, especially considering factors like age and previous surgeries.

3. In terms of decision-making, one person shared that after living with a temporary ileostomy for a year, they found the routine of a standard ileostomy easier than the demands of a Kock pouch. They decided to keep the external appliance, a choice that was supported by their surgeon.
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