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Jul 19, 2015

Nervous about upcoming colostomy - seeking support

This topic is about someone preparing for an upcoming colostomy surgery. They are dealing with pre-operative nerves, skin concerns, and the challenge of discussing stoma-related issues with friends and family. Here are some helpful insights and advice shared by others who have been through similar experiences:

- The person is getting ready for a colostomy and has a pre-operative assessment scheduled at the hospital.
- A stoma nurse provided a stick-on "practice stoma" and some sample bags. The first bag was worn for a day, and while removing it was a bit uncomfortable due to loose skin from a significant weight loss, the pink mark it left faded quickly.
- They have an adhesive remover spray but didn't need to use it.
- After previous emergency bowel surgery, they were house-bound with incontinence. The upcoming colostomy is expected to improve their quality of life, but anxiety is still present despite having had multiple abdominal surgeries before.
- They feel isolated because stoma-related topics are difficult to discuss with friends and family.

Additional details include:

- The pre-op assessment went well, with a slow but normal heart rate.
- The surgery will take place at Derriford Hospital, with an expected stay of about four days since a major bowel resection was done a year earlier.
- They are waiting for drainable sample bags and haven't practiced filling a bag yet.
- Post-discharge care is arranged for three months at their husband's home.
- Some acquaintances have withdrawn, with one expressing ignorance about the procedure.

Here are some pieces of advice and insights:

1. It's normal for the skin to turn pink or red after removing the wafer, but it fades quickly.
2. To protect fragile abdominal skin:
- Peel the wafer slowly while gently pushing the surrounding skin down.
- Moisten the wafer edge with lukewarm water to make removal easier.
3. Practicing before surgery is beneficial; some people wore a sample appliance for about a week before their operation.
4. To simulate the weight of a post-surgery bag, you can partially fill the practice bag with mashed potatoes, gelatine, or something similar.
5. Derriford Hospital’s stoma nurses have been supportive and helpful to other patients, so make use of them as a resource.
6. The colostomy is likely to restore the freedom and control that were lost due to unpredictable bowel movements.
7. It's common for friends or relatives to avoid stoma topics, but online forums can provide a safe place to share experiences and ask questions.
See full discusison
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