Diversion proctitis is caused by stool no longer passing through the rectum and anus.
If you have a permanent ostomy and rectal stump, you need to be aware of this.
Talk with a gastroenterologist about it.
Beachboy
Oct 05, 2025 1:05 am
GoinWithTheFlow
Oct 05, 2025 2:47 am
Though very new to the ostomy club, it's helpful to know about these possibilities. Good luck in finding relief, and please share your progress. Thank you!
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
SusanT
Oct 05, 2025 4:43 am
Interesting! I never would have guessed that screened donor poop was a thing!
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Hollister
In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.
IGGIE
Oct 05, 2025 10:38 am
I really hope it works for you. I never knew about this, but as I have a Ken Butt, I hope I never need it.
Good luck.
IGGIE
Justbreathe
Oct 05, 2025 11:53 am
Good to see you back on the site and posting. Your post is so well written and very informative - thanks for sharing it on MAO - it just may be an answer for someone with this issue…and that is why this site, with any ostomate issues, is so valuable and excellent. Take care and keep us posted….🫶🏼jb
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