Hi everyone,
I wonder if anyone has experience of diversion colitis? If so, could you offer any information on the consultant treatment that you have received?
I have had the condition for the last few years and finding it a real struggle.
Best wishes,
Nick
Hi Nick,
I too had diversion colitis and I probably know what you're going through.
At first the doctors prescribed suppositories and they did help for a few years, but they stopped working. The doctors told me that most people do really good with the suppositories long term and in my case the suppositories weren't staying in long enough to help.
Then they prescribed the same medication in a enema and that was just a disaster, on so many levels!
I decided to have my rectal stump removed, because I have a permanent colistomy. It was a big surgery, but I'm so glad I did it.
Talk to your doctor about what they think will help you. I hope your struggle ends soon!
Mel
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Hi Mel,
Many thanks for your message and the information that you provided.
I am currently utilising prednisolone steroid foam but looking at options.
Was your medication options provided by a gastroenterologist?.
Kind regards,
Nick.
