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Aug 23, 2015

Experiences with Bowel Dilation After Ileostomy?

This topic is about the experiences of people who have undergone balloon dilation for an anastomotic stricture before having their ileostomy reversed. An anastomotic stricture is a narrowing that can occur where two sections of the intestine have been surgically joined. The person sharing their story has been living with an ileostomy since 2014 and has a 1 cm stricture. Their surgeon suggests using endoscopic balloon dilation to widen the stricture, which could help avoid blockages and pain after the ileostomy is reversed. They are curious about how painful the procedure is, how many sessions might be needed, and what others have experienced in terms of success and complications.

Here are some insights and advice from others who have been through similar experiences:

- The procedure is typically done during a standard colonoscopy while the patient is sedated. A balloon is placed across the stricture and inflated. Most people reported feeling no pain during or after the procedure.

- The number of dilations needed can vary. Some people have had success with just one dilation and went on to have a successful reversal a few months later. Others have needed multiple dilations. For example, one person required two hospital dilations and continues to use a home dilation kit nightly to keep the channel open. Another person had three hospital dilations, but the relief only lasted about two months, and they are considering further procedures.

- Home maintenance can be important. Some people are prescribed nightly self-dilation kits to prevent the stricture from narrowing again, especially at the join between the small intestine and rectum. Skipping this routine can increase the risk of infection and other complications.

- Successful dilations can pave the way for a reversal of the ileostomy. However, re-narrowing is common, and multiple dilations or additional measures like self-dilation or stenting might be necessary. Regular follow-up imaging or scoping is crucial to monitor the stricture and decide on further treatment.
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