This topic is about someone who has faced recurrent rectal cancer, leading to a permanent ostomy and a troublesome parastomal hernia. Here's a bit of their journey and some advice and insights shared by others who have been through similar experiences:

- The person was motivated to get a colonoscopy in 2001 after seeing a public figure undergo the procedure on television. Despite having a family history of cancer, their doctor suggested waiting ten years. Unfortunately, by the time they were screened, they had developed rectal cancer.

- Treatment involved removing the tumor and creating a temporary ileostomy, which was later reversed. Since the cancer hadn't spread, no additional therapy was needed. Life mostly returned to normal, although there was some bladder incontinence.

- In January 2023, a colonoscopy showed no issues, but symptoms persisted, and the cancer returned in the same spot. Surgery was performed to remove the rectum, resulting in a permanent ostomy.

- A large parastomal hernia, about half the size of a large orange, now makes it difficult to get a good seal on the ostomy pouch, leading to frequent leaks, especially at night. A hernia repair in May was unsuccessful, and the hernia has come back.

- The person is seeking advice on managing the hernia and preventing leaks.

Here are some helpful insights and advice from others:

1. Several community members have offered personal support, willing to chat, share experiences, and provide local recommendations, especially in the Raleigh, NC area.

2. One person with a long-term ileostomy and a grapefruit-sized parastomal hernia shared that it is possible, though not without discomfort, to live with a large hernia and still achieve 5–7 days of wear time without leaks. They have detailed their management routine in forum blogs and on social media.

3. Members stress the importance of mutual support, sharing practical tips, and discussing personal experiences as valuable resources when dealing with recurrent cancer, permanent ostomies, and hernia-related leakage.